There were a few reasons why I stopped blogging about
dystonia, but one reason was because I couldn’t explain how I was able to
relieve my symptoms. After years of research and plenty of doctor visits, I
knew that dystonia was an incurable disorder that is only maintained by
medications. I also knew that it is defined by sustained muscle contractions
that remain despite input from the brain.
How then did I explain my symptoms, which at that time progressed
from permanent dystonic state to the occasional flare up? I couldn’t.
So for three years, I avoided the questions of how I was
doing, so that I would not have to tell people the truth: I was doing well. It’s not that I didn’t want them to know - it’s
more because I did not have an answer for how I did it.
So now, I am reconsidering that decision. Instead of hiding
my experience from those seeking information, I am going to share it. There’s
just one caveat. I still do not know whether my drastic decline in symptoms was
caused by my actions, a buildup of all the medicines I had taken, a change environment,
or even just luck.
So, consider my
experience with a grain of sand.
My hope is that you may find some relief in what I did, or
possibly give insight about why it might have worked.
I will be sticky posting this information as a page, so that
it easy to find.
Click to view how I treated my dystonia.
No comments:
Post a Comment
your comments are appreciated.