Tuesday, September 21, 2010


It has been a while since I've posted, and many of you have been wondering what Ive been up to. Honestly, not very much. Silence is a blessing when your life has been so crazy for a long time. But for my readers who are still out there here is where things stand with me and this blog:

  • I am currently not using any medications after I developed side effects to the tetrabenazine. The side effects were manageable with more medications, but I opted not to increase my medicine regiment.
  • I am using natural procedures to manage my symptoms such as diet and lots of rests
  • I am not as active in the dystonia community as I have been in the past, because I need to spend time with my family and provide a living income for myself
I do, however, miss blogging and providing the information that I did to the dystonia community and general public. Having said that I will do my best to keep this blog updated. I will continue to post on advocacy opportunities, dystonia in the news, and self help ideas. There may also still be some dear diary inserts but don't rely on those.. I may also be adding some reviews of items that may be relevant to my readership. I will be particularly careful as to which items I review because I do not want to dilute the usefulness of this blog.

Thanks everyone, and I hope to continue to have your attention =)


  1. Hi

    2 sites of interest:





  2. Here's another blog that may be helpful - I have linked to you




your comments are appreciated.