When I started looking online for other dystonia stories, I found the same theme amongst people who had Deep Brain Stimulation. As soon as they are able to they go and run a marathon...
What is it about dystonia that makes you want to do something incredibly athletic just as soon as your 'better'?
Perhaps (especially in generalized forms of it) there is such indescribable joy for once again having control of your muscles that you immediately want to test your personal limits.
There's also the possibility that dystonia spasms and contortions have left the un-dystonic muscles weak from not being used, and the best way to fix that problem is through a good old fashioned work out.
All of these things I didnt used to think about, but now I am facing what I imagine post DBS patients go through. The overwhelming urge to work out.
Even though I had some success with botox injections, I never went more than 3 weeks without spasms. The other six weeks were just weeks that took the edge off. With my current treatment it has now been three months without spasms or limp.
As a result some of the muscles in my legs, muscles that I suspect were barely used before, are suddenly growing in size.
Driving is no longer painful
Heels do not bother me one bit.
Walking endless hours no longer bring on leg fatigue.
I feel like I could run a marathon.
Im not however =).
I am going to join a gym and workout
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I'm so happy for you!!! I'm not running a marathon either but my husband did it for me! You're right about the freedom to move and how wonderful and miraculous (a word that my family/friends are using) it is to just get up and go. Great news, good for you! I just bought myself the Winsor Pilates workout so we'll see :)
ReplyDeletegym really, really helps
ReplyDeletebut be careful, as time goes, you'll get stronger, the willing to do "incredibly athletic" things will only increase, it has driven me to constantly overtrain and hurt myself, which makes me mess up my program with more and more rest days, cos of joint/back/neck pain, blocks my bloodflow like when i didn't work out at all :/
ALL THANKS TO DR WILLIAMS FOR THE GREAT DEED HE HAVE DONE FOR MY DAUGHTER?
ReplyDeleteMy daughter suffered from dystonia for more than 7 years which we started experiencing in her when she turned 4 year and 5 months we all thought it will end but got even worse as days went by. We tried all several treatments and therapy prescribed by various doctors we met but to no avail, she lost total concentration and always complain of neck discomfort . She usually tells me she haves jerky head movements . This were steady disorder that disrupted her entire life, even at night she slept less because of this.It was during a casual conversation with a friend that i learned about Dr Williams herbal medicine I was able to contact him on his email address. and give him all the necessary information that he needed,few day later he sent me the herbal portion and his medicine was able to restore her back to normal and she is very okay now without any side effects whatsoever. If you have dystonia , do not hesitate to contact him on drwilliams098675@gmail.com for advice and for his product. I hope this also helps someone out there.
I recently have some difficult conversations and I did what a lot of people do when they want to know how to do something. I googled it. I came across Dr Williams herbal medicine on blog-site so many people suffering from different kind of disease including dystonia thanking him about his good work. I also have dystonia. I wasn’t running all over God’s creation with every man I could find but here I am. I have felt bad about myself for so many years now because of my dystonia status. I obviously still have some self-accepting to do but I want to thank Dr Williams for everything he have done for me,after taking Dr Williams medicine i was completely free from cervical dystonia within one month of usage, I think what you are doing is so admirable. you have helped me a lot! I want to definitely reach out to you and thank you for your amazing work. You are a good person, and an extremely talented man. You have helped millions with your herbs, and have really inspired me,and i pray you still continue doing the good work.you can also email him on drwilliams098675@gmail.com for help
ReplyDeleteALL THANKS TO DR WILLIAMS FOR THE GREAT DEED HE HAVE DONE FOR MY DAUGHTER?
ReplyDeleteMy daughter suffered from dystonia for more than 7 years which we started experiencing in her when she turned 4 year and 5 months we all thought it will end but got even worse as days went by. We tried all several treatments and therapy prescribed by various doctors we met but to no avail, she lost total concentration and always complain of neck discomfort. She usually tells me she haves jerky head movements. This were steady disorder that disrupted her entire life, even at night she slept less because of this.It was during a casual conversation with a friend that i learned about Dr Williams herbal medicine I was able to contact him on his email address. and give him all the necessary information that he needed,few day later he sent me the herbal portion and his medicine was able to restore her back to normal and she is very okay now without any side effects whatsoever. If you have dystonia, do not hesitate to contact him on drwilliams098675@gmail.com for advice and for his product. I hope this also helps someone out there.
As a sign of gratitude for how my son was saved from dystonia , i decided to reach out to those still suffering from this.
ReplyDeleteMy son suffered dystonia and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony of so many people who was cured from dystonia and so many other with similar body problem, and they left the contact of this doctor who had the herbal cure to dystonia . I never imagined dystonia has a cure not until i contacted him and he assured me my son will be fine. I got the herbal medication he recommended and my son used it and in one months he was fully okay even up till this moment he is so full of life. dystonia has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks for reading my testimony .