Dear Diary: I dont miss you, Dystonia

I started a new medication in 2010. A little powerful pill called Tetrabenazine and it apparently is my wonder drug. Ive completed my six week trial, and I am walking straight, standing tall, and touching both shoulders with my chin... (not just the right one)

After over a year of dealing with the fear of waking up and not being able to straighten, I found myself doing things this month that I havent done in years. I call it my March Madness. My family calls it scary.

I was off to a slow start with my new medication. I have to say, I dont really remember much of February. There were eating spells, sleeping spells, dizzy spells, severe writers block and the infamous 3 days where I couldnt sleep at all. There were not, however, any dystonia spells.

After one week of the medication I gave up on it.

But after finally speaking with my neurologist about my side effects she encouraged me to stay on it a little longer.

Im glad I did.

I still have very difficult mornings, due to the side effects, but I am now back to sleeping 9 hours of sleep and living full, non or low dystonic days. ..

The benzos and or alcohol, has been downgraded to aleve and water.

Limping and cane walking has been traded in for strutting in 4 inch heels and dancing.

Tweeting my friends has been upgraded to road trips and parties with my friends.

All day sleeping has been exchanged for part time promoting.

Although this is not a cure, rather a maintenance medication, that may or may not work a year from now... I am glad to say I dont miss my dystonia.

but I do plan to live it up while its gone.