Saturday, July 26, 2014


When you are suffering from a rare disorder, information is a popular tool. Even though many doctors are still not familiar with dystonia, there are a collection of resources on Amazon that can help you get more familiar:

Now, you may be wondering, why did I post this under self help? Well, it is because understanding your options and your body is the first step to experiencing relief. Your doctor is depending on your ability to be able to communicate what you are going through. We are not at the point where they can just scan us and see what the problem is. These products help us recognize the symptoms we all share and hopefully help us find a cure. 

If you are looking for an even better way to contribute to finding a cure and spreading awareness about dystonia, did you know that you can also use Amazon to donate toward finding a cure?

Yes, through Amazon Smile, you can donate to your favorite nonprofit every time you shop for socks. How does it work?

You sign up at .
Once in, you can stroll through to select from a large number of charities. 

These include:
The Bachmann-Strauss Dystonia & Parkinson Foundation Inc
American Dystonia Society, Inc
Tyler's Hope for Dystonia Cure Inc
Cure Dystonia Now
Dystonia Medical Research Foundation
St Dystonia Inc
National Spasmodic Dysphonia Association

After signing up, a portion of your purchases will go toward your chosen charity.

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