Saturday, July 25, 2009

Spotlight: Dystonia Medical Research Foundation

Ive decided that I will take time to do a quick 'spotlight' on the many Dystonia non profits out there (that I can find) in no particular order under the advocacy portion of my blog... There are many different types of dystonia, and many organizations have decided to focus on specific forms.. This is helpful because there are sooo many people affected with the disorder I am sure one organization would be overwhelmed. My blog is not an endorsement of any non-profit. I volunteer wherever I am needed.. and have no money to donate. If it helps dystonia (any type) it helps me...

The Dystonia Medical Research Foundation (DMRF) was founded in 1976 and works to serve all people affected by dystonia. This very large organization that is involved in fundraising and advocacy to find a cure as well as education and support for those living with dystonia.

Dystonia Medical Research Foundation (DMRF) sponsors support groups in Canada and United States, hosts educational symposiums on dystonia topics such as DBS, hosts an annual symposium for families with dystonia, publishes Dystonia Dialogue quarterly, and maintains and seeks out publicity opportunities to bring more awareness to dystonia. There is also a wealth of basic information about dystonia on their website.

Members of DMRF are encouraged to fundraise to help fund projects for Dystonia Research which DMRF co-sponsors. DMRF is also a member of the Dystonia Advocacy Coalition.

For more information about Dystonia Medical Research Foundation check out

No comments:

Post a Comment

your comments are appreciated.