Thursday, July 2, 2009

IN THE PRESS: Special edition!

Its a Special edition because I wrote it :P

The Charlotte Post Newspaper wk of April 9-15 2009

Dystonia Misunderstood Ailment

Ethel Baker is just like any other older southern black women: she greeted me at the door with a warm hug, fruit tray, and offered me a seat. Her smile was genuine. Church music played softly in the background. However Ethel is not like everyone else, she has a rare neurological disorder called Dystonia.

I visited Ethel to watch The Oprah show. There was going to be a special episode on Parkinson's and Dystonia. We sat together, Ethel shaking a little in her chair as Oprah's guest talked about the need to use a cane so people would stop staring.

Ethel, staring at the screen, replied: “For 18 years we have been trying to bring dystonia to Oprah's attention. I'm so very happy.”

Dystonia is a neurological disorder affecting the portion of the brain called the basal ganglia. It is whats called a movement disorder, and is frequently treated in the same manner as Parkinson's disease. Dystonia is both genetic and acquired......

Read that rest by ordering a back copy from The Charlotte Post by calling 704-376-0496.

See the article on my facebook.

1 comment:

  1. Hey to all the dystonic Canucks out there! Or anyone eligible for the disibility tax credit, just heard about a gov`t program much like resp`s except called rdsp (registered diability savings plan) The govt will match every dollar of your savings, or depending on income, as much as $3 per every dollar. I think it1s a great program as anyone on disibility alone has great concerns re his or her future


your comments are appreciated.