How I Naturally Treated My Dystonia Symptoms



There is no cure for dystonia. 

This post discusses the actions I took in 2010 to treat my dystonia. Within 6 months of these changes, my neurologist, a specialist in movement disorders, confirmed that I no longer had symptoms of dystonia. 

Prior to beginning these treatments, I was diagnosed with:

  •  Hemidystonia and writer’s cramp
  •  Sjogren’s Disorder
  •  Gastritis
  • Hashimotos
  • Tachycardia

I was taking the following medications

  • Botox Injections
  • Klonopin
  • Tetrabenazine
  • Physical therapy for use of my hand

My doctor also recommended prednisone for my other conditions, but I declined taking it. 

While I experienced some success with the medications and therapies I was receiving, the side effects were not improving my quality of life.  I felt desperate to find natural alternatives to the medications I was taking in order to reduce my symptoms and increase my quality of life.  


Dystonia Symptoms

The first thing I wanted to do was reduce my dependence on tetrabenazine. It was very expensive and caused me a crippling amount of fatigue. I rarely used my klonopin, except in extreme situations. It allowed some range of motion, but did so at the expense of my memory. I developed gastritis after a few rounds of botox, so at my doctor’s suggestion, that treatment was discontinued. 

Since tetrabenzine was the only medicine I still depended on, I began by researching how it worked. My basic understanding was that it reduced the amount of dopamine in my body. At the time it was an experimental medication for dystonia. After some time, I discovered that there was another therapy that reduced dopamine in the body- meditation. I began meditating for 30 minutes every day, as soon as I woke up. 

Autoimmunity

My neurologist believed that many of the symptoms not related to dystonia could have been attributed to my autoimmune disorders. I actually found out that I had these disorders by accident. While searching for the root cause of my symptoms, antibody testing revealed a lot of abnormal activity. While my doctor could not explain how dystonia relates to autoimmunity, she did suggest that there is a connection. 

There are many natural treatments for autoimmune disorders, but I decided to focus on diet. While I didn’t notice any difference in symptoms following certain foods, I was willing to change my diet to see if it would work. I decided on a modified Paleo diet that was low in inflammatory foods and high in healthy fats. 

Fatigue

When my symptoms were at their worst, I was sleeping up to 14 hours a day and not doing much activity. After a month of the new diet and meditation, I slept no more than 8 hours a day. I also made a daily habit of doing some type of physical activity. This included walking, tennis and swimming. I drank more water and got plenty of sunlight. Over time, my muscles began to relax to a normal state.

I continued this practice for approximately 9 months. After the first two months I had stopped taking all medication. After 6 months, my neurologist stated my symptoms had significantly declined. After 1 year, I was able to become pregnant and have a successful pregnancy. 

At times, my symptoms have re-appeared, but to this day they have not returned to the disabling state they previously were.

44 comments:

  1. I only wish my children's Dystonia was as simple as Writers Cramp.

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    1. I wish I only had writer's cramp =) That was only the first of my symptoms. Have you had genetic testing done on your child? Have you done Sinemet testing to see if they are dopa-responsive? Is it secondary to another condition? My hemidystonia most likely is.

      Dystonia is extremely hard for everyone. I wish you and your child the best luck in finding relief.

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  2. So glad you found something that helped. I gave early onset generalized dystonia...changing my diet helped. However it in no way made a drastic change. DBS has been my best treatment. Best wishes.

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    1. YAY!! I know plenty of people who had successful results with DBS. It seems like a good route for people with generalized.

      I wasn't a candidate for DBS. (I had a consult.) After a year of trying everything, I was willing to do whatever it took to calm my symptoms.

      As I told the previous commenter, my hemidystonia is most likely secondary.. and perhaps my diet change stopped whatever was triggering my dystonia. Not sure- but still happy.

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  3. I went on a gluten free, dairy free diet and it makes a huge difference. I can tell when I have either one as my tremors that I get with my cervical dystonia go wild!

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    1. Thank you for commenting!

      I am glad I am not alone in experiencing these results. I am not saying everyone will have the results I did, I am saying I had these results, so likely someone else could too.

      My true goal in sharing my experience is that someone will read this.. agree or disagree.. then talk to their doctor about the affect of diet on their dystonia, -- why it did or did not work for them -- and perhaps we'd get to the bottom of what really is going on with dystonia as a whole.

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  4. I too, feel there is a strong connection with Dystonia and Sjogren's, for I have both of them...although I don't have serious symptoms with SS, I sure know when it is flaring on me. Right now here in Arizona it ismonsoon season and with all the unstable weather, my Dystonia and Sjogren's and osteoarthritis all collide making for one very unhappy camper. I will seriously consider your lifestyle changes and hope this all helps other people as well.
    Keep fighting the good fight, Jenn!

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    1. I have both too. I wonder if the decrease in moisture in our bodies impacts our muscles

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  5. Hi. I just want to make sure, does gluten free diet really works? How long does it take until you see and feel the difference? Thanks. I need a confirmation, because i currently have cervical dystonia. Its been 2 years now. I am unable to walk and use both hand now. I do hope this diet will actually work.

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  6. Hi. I just want to make sure, does gluten free diet really works? How long does it take until you see and feel the difference? Thanks. I need a confirmation, because i currently have cervical dystonia. Its been 2 years now. I am unable to walk and use both hand now. I do hope this diet will actually work.

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  7. Im not diagnosed but have all the symptoms of dystonia. It comes on mildly when im tired, stressed or cold.. but not a bother. BUT if o eat gluten or dairy.. fully body.. debilitating... muscle spasms.. this recent one webt for days. And then my muscles have been so heavy and weak all at the same time i have felt like i am dying. I can say with fully confidence.. that if anything.. gluten and dairy free.. and corn free because corn is cross reactive with gluten... will work or atleast tone it down massively.

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    1. Ignore the spelling errors. Im so warn out from recent dairy consumption and possible accidental gluten consumption and a string of spasms following. But yes. Please do try gluten and dairy free and stick to it 100 percent because i am quite sure it will help.

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  8. Hi, My name is Lina Schneider, I am 31 years old,
    And live with my boyfriend in Belgium, but I am Colombian. I was diagnosed in 2012 with cervical dystonia/spasmodic torticollis. Doctors told me this condition was forever. I know how you feel and what you are going through. I just want to tell you that I am cured now, the last time I can remember having cervical dystonia was in the summer of 2014. It was a long and difficult process but I am so thankful I don't have it anymore. Please know you can be cured too. Accept what happened and is happening to you, forgive, let the past go, love yourself and others unconditionally and be thankful. Everything happens for a reason. If you want to be in contact and share experiences and thoughts feel free to e-mail me.

    Best regards,

    Lina

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    Replies
    1. Hi Lina, what did you do to cure your dystonia? Thanks

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    2. Hi Lina, can you please share your email or send me a test mail so I can talk about my dystonia

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    3. Hi Lina, could you please share your email? I was recently diagnosed with oromandibular dystonia and im desparate for help/advise.Thank you

      Delete
  9. So it is important to know about the symptoms and possible herbal treatment options, such as extra Natural Herbs for Sjogren’s Syndrome, such as rheum rhabarbarum, ginger, vitamin E, and others.

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  10. As a sign of gratitude for how my husband was saved from cervical dystonia/spasmodic torticollis, i decided to reach out to those still suffering from this.
    My husband was diagnosed of cervical dystonia/spasmodic torticollis in 2013 and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, he always have Joint pain , and he always complain of Weakness of the body . we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony by someone who was cured and so many other with similar body problem, and he left the contact of the doctor who had the cure to cervical dystonia/spasmodic torticollis . I never imagined cervical dystonia/spasmodic torticollis has a natural cure not until i contacted him and he assured me my husband will be fine. I got the herbal medication he recommended and my husband used it and in one months he was fully okay even up till this moment he is so full of life. cervical dystonia/spasmodic torticollis has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks for reading my testimony.

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    1. Hi, i just tried to email this doctor, but it tells me that this email is invalid

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    2. Can you please give me the website of this Dr. Williams? I would love to get in touch with him

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    3. Okay you can visit his website on dystoniacure.blogspot.com
      His really a good man.

      Delete
  11. This is really a very nice blog that will very helpful to all people having with dystonia disease.

    Dystonia treatment in Bangalore

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  12. ALL THANKS TO DR WILLIAMS WITH HIS HERB MY WIFE WAS COMPLETELY CURED FROM DYSTONIA.
    Is my pleasure to comment on this site and i thank the admin of this site for his/her great work so far.one of the happiest moment in my life was when the doctor confirm that my wife is been free from this illness. this awesome moments makes me the happiest man on earth, I really don't know how to thank DR WILLIAMS for helping my wife get cured for over how many year of suffering from dystonia. i came across DR Williams contact through a headline news on internet about how DR Williams help a woman to get cured of her dystonia and so many other with similar body problem ,i contacted him and he told me how to get his herb,few day later he sent me the herbal portion which my wife take every morning for 28 days, and his medicine was able to cure her completely from dystonia. and now she very mush okay without any side effects whatsoever, If you have dystonia, you can contact him on his email address drwilliams098675@gmail.com for advice and for his product.

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    Replies
    1. Thank you so much for giving us this information. Just wanted to confirm was your wife having cervical dystonia?? Can you tell me where can i get more information regarding Dr.Williams?? Any website or portal regarding his details would help. Thank you

      Delete
  13. This comment has been removed by the author.

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  14. Great Post! Nice information you shared about treatment we need to take while effected to Dystonia Symptoms. Thanks for sharing.

    Tremor treatment in Bangalore | Dystonia treatment in Bangalore

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  15. Nice Post! Good information you shared about Dystonia Symptoms treatment. It is so helpful to me.

    Tremor treatment in Bangalore | Dystonia treatment in Bangalore

    ReplyDelete
  16. Dear FRIENDS,
    now i have a beautiful smiling face and so are which you all, after reading my testimony. My name is kate, I am 31 years old,
    And live with my boyfriend in Belgium, but I am UK. I was diagnosed in 2012 with cervical dystonia/spasmodic torticollis. Doctors told me this condition was forever. I know how you feel and what you are going through, I don't have a baby though. I just want to tell you that I am cured now,with the help of doctor williams herbal medication, the last time I can remember having cervical dystonia was in the summer of 2016. It was a long and difficult process but I am so thankful to dr williams I don't have it anymore. Please know you can be cured too. Accept what happened and is happening to you, forgive, let the past go, love yourself and others unconditionally and be thankful. Everything happens for a reason. If you want to be in contact with dr williams and share your own testimony and thoughts feel free to e-mail him on; drwilliams098675@gmail.com for advice and for his product.

    Reply

    ReplyDelete
  17. I am Shelley from Los Angeles,California, I want to testify on how i got cured from cervical dystonia, I have suffered from cervical dystonia since the year 2011 with so mush pain,that i have to spend so mush money getting pain relief in the hospital, and I have visited several doctor ,but all to no avail, my world was gradually coming to an end because of the constant muscle contractions and pain , until i saw a post in a health forum about a herbal Dr Williams who use herbal portion in curing people from different kind of diseases including dystonia, at first i doubted if it we be able to cure me, but i decided to give it a try, when i contacted this herbal doctor via his email, he prepared a herbal portion and sent it to me via courier service, when i received this herbal medicine, he gave me step by step instructions on how to apply it, when i applied it as instructed, i was completely free from dystonia just for 1 months of usage,i we recommend this to all my friend family in the world today who still suffering from dystonia you can contact him through his email on drwilliams098675@gmail.com for help.

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  18. This comment has been removed by the author.

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    1. The references to Dr Williams appear very promising but my experience suggests this is not Dr Williams email address. I was asked to transfer money to a bank account in Nigeria. On emailing Dr Williams official website I was informed that the email address quoted is not his email address.Sadly this looks like a cynical scam.

      Delete
    2. Hello everyone his the real doc was skeptical about him before just receive his medicine.

      Delete
  19. Thanks to Dr Williams I am so mush happy today, I have been suffering from dystonia for the past 8 years now, and i have spent a lot on western drugs which has all proved abortive, i have tried all means in life to become dystonia free , but there was no answer until i decided to try herbal solution and i found Dr Williams online and i contacted him and after I took his medication as instructed, i am now completely free from dystonia within one month of usage, i am so much happy, thanks to Dr Williams for helping me get my life back again without any form of crisis, i promise to tell your name and good deeds to the whole world,if you have dystonia you can email him on drwilliams098675@gmail.com for advice and for his product.

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    Replies
    1. Thanks for your good recommendation to Dr Williams,am now also free from cervical dystonia after one month of using his medicine.

      Delete
    2. Please beware, the email address quoted for Dr Williams is not genuine. Interesting name used in last testimonial. How gullible does this person think we are??!!!

      Delete
  20. As a sign of gratitude for how my son was saved from dystonia , i decided to reach out to those still suffering from this.
    My son suffered dystonia and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony of so many people who was cured from dystonia and so many other with similar body problem, and they left the contact of the doctor who had the herbal cure to dystonia . I never imagined dystonia has a cure not until i contacted him and he assured me my son will be fine. I got the herbal medication he recommended and my son used it and in one months he was fully okay even up till this moment he is so full of life. dystonia has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks for reading my testimony .

    ReplyDelete
  21. I am Karen from Canada, I once suffered from cervical dystonia,for more than 30 years , the doctor told me there was no permanent cure i was given medications to slow down its progress, i constantly felt my health was deteriorating as i constantly had jerky head movements and muscles contract ,this ailment was really terrible especially when am going out with my friends, i have this constant disorder for about 30 years, this was really a terrible ailment ,on thin one day that i was going through the internet,and i came across a post of Mrs Jessica on how her daughter was been cured from cervical dystonia through the help of Dr Williams herbal product, I contacted this herbal doctor via his email and explain everything to him and make purchase of his product,few days later he sent me the herbal medicine through courier service, when i received the herbal medicine, i used it for 1 months as prescribed by Dr Williams and i was totally cured within those week of usage,on thin now i have not experience any sign or characteristics again for more information you can email him on drwilliams098675@gmail.com for help .

    ReplyDelete
  22. Thanks to Dr Williams I am so mush happy today, I have been suffering from cervical dystonia for the past 8 years now, and i have spent a lot on western drugs which has all proved abortive, i have tried all means in life to become dystonia free , but there was no answer until i decided to try herbal solution and i found Dr Williams online and i contacted him and after I took his medication as instructed, i am now completely free from dystonia within one month of usage, i am so much happy, thanks to Dr Williams for helping me get my life back again without any form of crisis, i promise to tell your name and good deeds to the whole world,if you have dystonia you can always go through his website on drwilliams098675@gmail.com for more information ..

    ReplyDelete
  23. This comment has been removed by the author.

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  24. Dr williams is fraud he took from me
    £260/- for tinitus medicines but never send me medicines
    I send him money through money gram and he received money in UAE I have documentry evidences
    I am in london uk my email (husein005@hotmail.com)
    I am tinitus sufferer pls pls for God sake be carefull this address (drwilliams098675@gmail.com)is FRAUD on some pages
    I seen he comes with 098765,ALL ABOVE IF YOU OBSERVE THOROUGHLY SAME NAMES ON DIFFERENT WEB PAGES RECOMENDING DRWILLIAMS098675@GMAIL.COM
    ON DIFFERENT DISEASES THIS ALL SCAM

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    Replies
    1. I have finally receive my medicine sorry for the miss understanding ,love you dr Williams

      Delete
  25. Dear FRIENDS,
    now i have a beautiful smiling face and so are which you all, after reading my testimony. My name is kate, I am 31 years old,
    And i live with my husband in Belgium, but I am from UK. I was diagnosed in 2012 with cervical dystonia. Doctors told me this condition was forever. I know how you feel and what you are going through,  I just want to tell you that I am cured now,with the help of doctor williams herbal medication, the last time I can remember having cervical dystonia was in the summer of 2016. It was a long and difficult process but I am so thankful to dr williams I don't have it anymore. Please know you can be cured too. Accept what happened and is happening to you, forgive, let the past go, love yourself and others unconditionally and be thankful. Everything happens for a reason. If you want to get in contact with dr williams and share your own testimony and thoughts feel free to e-mail him on; drwilliams098675@gmail.com for advice and for his product.

    ReplyDelete

your comments are appreciated.